Free adult ipad chat room no registration Dating someone with spinal muscular atrophy

Just be there for her, give her the opportunity to off load when ever she needs this, be a listening ear for her.

jeanettex Hi Val, I'm the disabilities advisor here on netmums Your friend is so lucky to have such a caring and thoughtful person in her life It's so lovely to read you want to be there for her....Val thats the most important and crucial thing you can do for her which is worth more than anything money can buy, REALLY!Not that being sad all the time would be the best way for me to live my life either, but I’m genuinely happy 99.9% of the time, which gives me a slightly distorted view of reality that causes me to forget the fact that I am in a wheelchair and need to do mostly everything a little bit differently than everyone else.For instance, I love sleeping, it’s one of my favourite things, but about a year ago my stupid doctors ordered that I start using a bi-pap to help me breathe while I sleep.Hi, my friends little boy has been diagnosed with this condition 19 months old and not crawling yet after numerous doctors apps and test this is been confirmed as condition.

can anyone who has a little one with this condition as i want to be there for her Hi Val Thankyou for your post.

Motor neurones are nerve cells that connect the brain and spinal cord to the body’s muscles.

The motor neurones send out electrical signals to the muscles, which tell the muscles when to contract and relax.

Eventually I will catch a cold, it will turn into pneumonia, and my body won’t be able to fight it off.

I have a disease called Spinal Muscular Atrophy (Type 2) that has been slowly destroying all the muscles in my body for the last 18 years, 11 months, and 354 days.

My basic response after trying the machine for one night was And yet, I don’t want to die – not today, not tomorrow, not ever. Besides doing some things differently, I pretty much live a normal life.